British Isles Lupus Assessment Group

BILAG BR

BILAG Biologics Register (BILAG BR)

The BILAG Biologics Register (BILAG BR) is a UK-wide real-world lupus cohort that supports long-term evaluation of biologic therapies, treatment patterns, and clinical outcomes in systemic lupus erythematosus.

It provides high-quality observational data to inform clinical practice, guideline development, and collaborative research.

Visit BILAG BR at University of Manchester

Applying for Data Use (Academic Work)

Academic investigators interested in using BILAG BR data should follow this process:

  1. Prepare a short proposal outlining the research question, rationale, study design, variables required, and planned outputs.
  2. Provide evidence of institutional sponsorship and local governance/ethics readiness where applicable.
  3. Submit the request through the BILAG BR team via the University of Manchester BILAG page and contact route.
  4. Data requests are reviewed by the relevant BILAG BR governance group for scientific merit, feasibility, and data protection compliance.
  5. If approved, a data sharing agreement and analysis plan are completed before any data release.

For current instructions and contacts, always use the official BILAG BR page.